The Children’s Brain Tumor Project is a research effort at the Weill Cornell Pediatric Brain and Spine Center, co-directed by Dr. Mark Souweidane and Dr. Jeffrey Greenfield. The Children’s Brain Tumor Project has a single goal: to bring hope to the hundreds of patients and families each year who confront the heartbreaking diagnoses of rare and inoperable pediatric brain tumors.
Gliomatosis cerebri, DIPG, AT/RT, and thalamic gliomas are just a few examples of the devastating brain tumors that typically strike children, adolescents, and young adults. Because they are so rare, these inoperable tumors simply do not get the funding or attention that research scientists need to find a cure.
The Weill Cornell Children’s Brain Tumor Project takes a multi-pronged approach to the research:
Genomic sequencing will offer physicians the ability to quickly identify a brain tumor’s “fingerprints” at the molecular level, allowing for personalized tumor therapy.
Alternative delivery methods will bring the right drugs for an individual patient right to the tumor site, bypassing the blood-brain barrier.
Basic science research lays the foundation for translation into clinical trials, with the goal of bringing new treatment options from bench to bedside as quickly as possible.
The project is “powered by families” — donations come from the families, friends, and supporters of the children, adolescents, and young adults diagnosed with these tumors. In the absence of major funding from government agencies or major foundations, the Children’s Brain Tumor Project is supported by those with the most at stake in this battle.