Twitter Chat – September 5


Wednesday, September 5, at 11AM (Eastern).

Weill Cornell Medicine Brain and Spine Center, @WCMCBrainSpine, invites you to participate in a Twitter chat with co-hosts Dr. Mark Souweidane, co-founder of the Weill Cornell Medicine Children’s Brain Tumor Project, David Walker, Professor of Pediatric Oncology at University of Nottingham and Chair of the Children’s Brain Tumor Drug Delivery Consortium, and The Coalition Against Childhood Cancer.  The broader brain tumor research and advocacy community will be engaging in this real-time conversation about the current landscape of pediatric brain tumors.

Special thanks to our co-hosts at the Coalition Against Childhood Cancer (@CAC2) for participating in the chat and sharing among its members who support and serve the childhood cancer community.

Follow @WCMBrainSpine@DrSouweidane , @DavidWalker40, @CAC2org and @CBTDDC as we gather online by following and posting with the hashtag #KidsBrainTumors.  The team will be interacting directly with all participants, as will various members of the pediatric brain tumor research and advocacy community.


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09/05/2018 11:00 AM
09/05/2018 11:30 AM
Pediatric Brain Tumor Twitter Chat (#KidsBrainTumors)


The Children’s Brain Tumor Project Named Beneficiary of Dribble Against Cancer

The Children’s Brain Tumor Project (CBTP) is proud to be named a beneficiary of the 2018 “Dribble Against Cancer” weekend hosted by Big and Little Skills Academy in Brooklyn on June 16th and 17th. Dribble Against Cancer is a two-day event that raises funds for childhood cancer research and impacted families while promoting a holistic and healthy lifestyle amongst the youth in our community.

The event consists of a two-day weekend that kicks off with a celebrity basketball game honoring survivors and families impacted by childhood cancer. It culminates the following day during the one-mile Dribble-a-Thon fundraiser alongside the Brooklyn Bridge.

The CBTP will be participating in the Dribble-a-Thon and we hope you will support our team! Register to dribble with the Children’s Brain Tumor Project or help us reach our goal with a donation.

More information on the celebrity basketball event can be found here.

More information on Dribble Against Cancer can be found here.


About Big and Little Skills Academy (BALSA)

BALSA, the host of this exciting weekend, is a national youth development organization focused on focused on promoting a holistic and healthy lifestyle through sports and leadership. Founder and professional athlete, Jamael Lynch, suffered loss in his family due to cancer and decided to do something about it. Passionate about youth, service and sports, he began Dribble Against Cancer to help increase survivorship and to incorporate high quality service-learning to its youth programming. Visit for more information.

We Need You to Help Us Light Up the Lab

Light Up The Lab

One of the unique things about the Children’s Brain Tumor Project laboratory is how personally we all take this work. Nothing shows that quite like the hallway of our lab, which is lined with photos of children whose lives were claimed by these terrible, incurable tumors. We see these faces every day, to remind us that we are not just scientists working on cells. We are working for children, and for the families who love them, in a daily race to find new treatments. Every picture on our wall tells us the story not just of a child but of that child’s devastated family, and as we walk past each one we remember why we do what we do: to create hope. Read more

Second International Gliomatosis Cerebri Conference: June 22-23, 2017

Second International Gliomatosis Cerebri Conference
June 22-23, 2017
National Institutes of Health, Washington, DC

We are delighted to announce that planning is now under way for the second International Gliomatosis Cerebri Conference. The first conference, held in Paris in 2015, was generously funded by families dedicated to curing GC; it included scientists, foundations, and families from around the world. That first meeting laid the groundwork for international collaboration to advance GC research, and set a goal for establishing patient and tissue referral centers in London, Heidelberg, and New York.

Many of the families and foundations who attended have held monthly international phone calls and communicate regularly via email and social media, and they are committed to helping fund this next important session. If you are interested in providing support, please make a donation to the CBTP or reach out to the AYJ Fund, Elizabeth’s Hope, or the Joshua Bembo Project in the United States, or Izas la Princesa Guisante (Spain) or Franck un rayon de soleil (France).

First GC meeting 2015

Family Events Update: Spring 2016

Spring brought with it a new season of the races, tournaments, and festivals that help spread the word about the Children’s Brain Tumor Project and raise much-needed funds. Many thanks to the families that host these events, and to the communities that continue to to support them. We could not do our work without you!

Janine Koehler at 7th annual tournamentThe Christian Koehler Foundation got some nice coverage in Newsday for its 2016 Lacrosse Tournament. Chris and Janine Koehler host this event each year in memory of their son, and they have donated a total of more than $40,000 of the proceeds to the Children’s Brain Tumor Project. Our thanks to Chris and Janine, as well as to the players and families who continue to turn out to support us each year.
Read more

Bronxville Road Race 2014

Bronxville Road Race 2014

L-R: Dr. Jeff Greenfield, Dr. Caitlin Hoffman, Dr. Carrie Long, Dr. Mark Souweidane
L-R: Dr. Jeff Greenfield, Dr. Caitlin Hoffman, Dr. Carrie Long, Dr. Mark Souweidane and their families
The inaugural running of the Bronxville Road Race for the Children’s Brain Tumor Project will take place on September 13, 2014. All proceeds benefit pediatric brain tumor research at Weill Cornell Brain and Spine Center. The CBTP focuses on the research and treatment of rare and inoperable brain tumors that affects children and young adults. The CBTP was founded, in part, with the generous support of Elizabeth Minter (Bronxville High School Class of 2009) and her family, longtime residents of Bronxville. Elizabeth was diagnosed with gliomatosis cerebri in 2010 and lost her battle with the disease in 2012. Read more