WE’RE HERE FOR YOU
When a child is diagnosed with a brain tumor, the family may feel forced to navigate this complex journey alone and uninformed. We gauged the opinions of the CBTP Family Council and asked about their greatest unmet needs. Our patient families expressed disappointment in the lack of resources that are easy to comprehend across all aspects of how a diagnosis may impact the family – from making important medical decisions to how their “new normal” might affect every day life. Family resources are essential.
The Children’s Brain Tumor Foundation
Finding Your Way
Over the years, Dr. Mark Souweidane has worked closely with the Children’s Brain Tumor Foundation (CBTF), a renowned nonprofit whose mission is to improve the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor. In previous years, Dr. Souweidane served on the medical advisory board, and in 2020 he is the proud recipient of the CBTF’s Pioneer Award for Pediatric Neurosurgery.
With help from the review of Dr. Souweidane and many of his peers, the Children’s Brain Tumor Foundation has produced a comprehensive resource guide to help provide guidance to families who have a child diagnosed with a brain tumor. The guide is free to all families and addresses a wide range of topics including diagnosis and treatment, family impact, returning to school, and community resources.
For more about how the Children’s Brain Tumor Foundation can help brain tumor families, visit http://cbtf.org.
We are grateful to this organization for producing such a thoughtful and resourceful publication.
How Can We Help?
We want to hear from you. Please share your ideas with us so we can develop better resources to support your family.