As 2020 comes to a close, we’re asking all of our supporters to remember those children who inspired them to support this cause, and to help us light up the lab by paying tribute to them with a year-end, tax-deductible contribution. 

Lighting up the lab takes on several meanings. First and foremost, we light up the lab for our families. We will decorate the lab with battery-operated candles and festive holiday lights throughout the holiday season as a tribute to those diagnosed with a brain or spinal cord tumor. The candles will be a beautiful reminder that for some, their lights shine on in our hearts. The string of holiday lights hanging at the entrance will represent a celebration of many more holidays to come for our fighters and survivors.

To our researchers, “lighting up the lab” means funding ideas. It means having the ability to explore an idea when a lightbulb goes off, and the support to continue lighting the way toward scientific discovery.

We invite you to get to know some of our families starting December 1, when different feature stories will be posted throughout the month to introduce our donors to the children for whom we work so hard. All donors who make a year-end contribution will be provided with acknowledgement cards that can be given to friends and loved ones in lieu of, or in addition to, gifts. We thank you for honoring our children and supporting our progress.




A patient of Dr. Mark Souweidane, Charlie was diagnosed with a brain tumor, PNET, when he was eleven years old. He will soon be sixteen and he is thriving! We invite you to watch his inspiring story, and to read about his journey in his own words here.


Joey’s mom shares her son with us, and talks about how important it is to her that she is able to fundraise for research in his memory. The Claytons are one of the families who support the Children’s Brain Tumor Family Foundation, 100% of funds from which support the research of Dr. Mark Souweidane and Dr. Jeffrey Greenfield at the Weill Cornell Medicine Children’s Brain Tumor Project. Read her inspiring blog about running the marathon in support of the CBTFF here.


In May 2016, Max’s story was featured in an incredible campaign published by Humans of New York (HONY) that focused on pediatric cancer. Max’s mom, Julie, shared the experience of his terminal diagnosis, and his story helped HONY author Brandon Stanton raise more than $1,000,000 to benefit the research of Dr. Mark Souweidane. Watch this beautiful tribute to Max and read the powerful series on HONY here.


Enzo was diagnosed with a brain tumor when he was only 5 1/2 months old.  Today, he is seven.  Enzo is an inspiration to all families facing a pediatric brain tumor diagnosis, and we hope you will read this incredible blog written by his mother here.


Sweet baby Ellie was diagnosed with a Grade IV Glioblastoma brain tumor at 11 months old. Although she has been in treatment after several intense surgeries, she maintains a contagious smile through it all.  We encourage you to watch her beautiful video, and to visit her website to follow her journey.


We want to introduce you to Stuart, who lives in Bronxville. Stuart was diagnosed with medulloblastoma just before his third birthday, and today he is THRIVING. Stuart’s message is a message of hope, but also a message about how we need to do better for these kids. With research comes safer, more effective treatment options on the horizon. We thank you for your support.