Do Something – Gliomatosis Cerebri International Conference Hosted in London
October 1, 2025 - At the 5th International Gliomatosis Cerebri Conference, scientists, clinicians, and family advocates from around the world convened to share breakthroughs, spark new collaborations, and accelerate progress toward better treatments for GC.
BREADCRUMBS
With the conclusion of 2025, I reflected on my previous essay, Purple Encounters. Full of questions. Even doubts if what I wrote was just a temporary bandage to get through year one? Do we still find refuge in Keanu’s favorite color, purple? Does it still symbolize his spirit watching over us? What could I take with me as we enter year two this May? Another round of birthdays, family outings and holidays came along, but Keanu was not here to blow out his candles, join in our family group hugs or take pictures that showcased his beautiful smile and personality...
Kenan Thompson Presents $365,000 Donation
January 3, 2026 - On behalf of the Cristian Rivera Foundation, our largest funder of DIPG research, Kenan Thompson presented Dr. Mark Souweidane with a $365,000 donation to support his research underway at the Children's Brain Tumor Project.
Reflecting on the Great Success of 16th Annual Cristian Rivera Foundation Gala
December 1, 2025 - Hosts Darlene Rodriguez and Malik Yoba host the 16th Annual CRF Celebrity Gala. The event celebrated hope, honored leadership, and fueled groundbreaking research for children facing DIPG.
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December 3, 2025 - Peer-to-Peer support group is now available to teens and young adults facing surgery after a brain or spinal cord tumor diagnosis.
Announcing Patient-Driven Companionship Program
December 3, 2025 - Peer-to-Peer support group is now available to teens and young adults facing surgery after a brain or spinal cord tumor diagnosis.